Simon and Selina Robinson
We are passionate about raising awareness about neuroendocrine tumours and this little known cancer.
NET Cancer Foundation provides people who have been diagnosed with a neuroendocrine tumour with whatever help and support they need.
In 2020 we are working to increase the links between Research, Doctors, Patients and the Community.
NET cancer is an acronym for Neuroendocrine tumour. NET or NET's is an umbrella term for a group of unusual, often slow-growing cancers, which arise from the neuroendocrine cells found throughout the body. For years, this group of cancers was identified as a specific disease called carcinoid.
***Both Steve Jobs and Aretha Franklin died from Pancreatic Cancer which had been caused by a neuroendocrine tumour***
Simon Robinson is the Director of NET Cancer Foundation. He set up the foundation after being diagnosed with NET Cancer in June 2017. After various tests, scans and a biopsy it was discovered that he had a neuroendocrine tumour. Treatment in the form of monthly injections called Lanreotide began which will be ongoing for the rest of his life. After a couple of months he was offered the chance for treatment with PRRT. This was part of a clinical trial which has since been approved in both the United States and in the United Kingdom therefore increasing the chance of survival to many more sufferers. Since undergoing treatment Simon is Director of NET Cancer Foundation and runs monthly meetings called #Netchatter.
We focus on making the maximum positive effort for anybody who needs support after they or a family member has been diagnosed with NET Cancer.
Your support and contributions will enable us to invest in finding a cure for #nets and support some of the people who suffer from it.
Learn more about our upcoming events, fundraisers, and more!